LINK TO MY RECOVERY VIDEO:
VIDEO CLICK HERE
LINK TO MY ORGANIZER:
ORGANIZER TIPS CLICK HERE
*ABSOLUTELY EVERYTHING IS EXHAUSTING!! I live in a world now, where there is no such feeling of “well rested”, even 12 hours of sleep at night still means mentally exhausted!
*Feeling "numb" is normal. It feels like you are just watching the world go on but you are not actually a part of it. Perhaps it is sheer exhaustion and perhaps the brain can't keep up with such a rapid world!
*I have trouble switching or transitioning from one task to another; I find it nearly impossible!!!!
*I didn't have an appetite for years; I still don’t really have one, I eat meals at the same time each day to remember.
*Just because I can tolerate more things on a "good day" does not mean I can always or consistently tolerate them. On a "bad day,” my tolerance for any extra sensory input is greatly diminished!!!
*Dialing a phone number (transferring numbers), was a nightmare and beyond me, but being treated “like a child” only made me mad, since in my head, I was a fully functioning 25 year old!
*Talking too much makes me uptight, exhausted, and nauseous, due to “flooding” or too much information for my brain to process!! Language processing is still a struggle and sometimes I just stare blankly during a conversation because I am unable to keep up (the first clue is me repeating “uh huh” over and over; it is the worst on the phone.) But, I still can't help myself, I usually just keep talking, ‘paying’ for it later!!
*I have to write a number next to each activity in my day. At first I needed help; now I can do it myself.
*My short term memory is terrible but is slowly improving (when I use my “memory strategies” like writing EVERYTHING down in one place and using my daily checklists).
*I was an emotional basket case. I cried at every little thing until I was put on a mood stabilizer!
*For the safety of everyone, I am still only "allowed" to drive in familiar areas. I literally can't navigate while driving! I will either forget I am driving or forget to navigate! ONE THING AT A TIME NOW!
* My attention span is greatly diminished; making it very difficult to concentrate on any one task for too long and I am now easily distracted by anything around me!
*Personality changes, you ask?? Here are just a few...........
-Rarely do I get excited about things like I used to. Activities I used to really enjoy, have simply become exhausting and filled with "lots of steps; way too many steps to think about sequencing!" Things that you do “without thinking” take considerable thought and planning!! Now, I am generally apathetic and melancholy.
- Now I like and need time alone (I mean like no TV, no phone calls, no visitors, ALONE). I never used to be this way, I was exactly the opposite, and I loved having people around me 24/7!
- I would be getting mad and not even know it, causing some episodes of what seemed like "flash anger" out of sheer frustration!
- More frequent panic attacks due probably to my inability to cope with all the extra sensory input around me!
- I have a very, very hard time being “flexible.” I like to religiously follow a schedule and want an exact plan for everything!!
- As a result of my injury my brain no longer has a “filter.” I generally say whatever it is I am thinking which, on a positive note, has made me a bit more “outgoing” than I used to be.
* You can now label my injury as "Acquired Brain Injury"(Acquired from a subarachnoid hemorrhage/stroke). BUT, it has still been very traumatic to me!
WHAT MY NOTECARDS SAID ON THEM:
PS: here is a link to a video clip of me speaking--> please don't compare and contrast, I missed a few things, I know!! My humble apology to my co-presenter Artie! He did great and I'd like to include both presentations but, alas, this silly link refuses to fully download!! Fixating on it for days now, I have tried everything in my power with an unfamiliar program so here is the most I could get!
VIDEO CLICK HERE :-)